The European Medical Information Framework (EMIF)-Platform has leveraged data on more then 62 Million European adults and children by means of federation of healthcare databases and cohorts from 7 different countries (DK, IT, NL, UK, ES, EE), designed to be representative of the different types of existing data sources (population-based registries, hospital-based databases, cohorts, national registries, biobanks, etc.).
The data is represented in the EMIF Data Catalogue.
During its project lifetime, EMIF has developed and made the EMIF Data Catalogue publicly available to the research community. The EMIF Data Catalogue is a text-book example of EMIF’s mission to improve identification, access and assessment, and (re)use of health data within the European Union.
The EMIF Catalogue allows users to explore population-based (e.g. Electronic Health Record (EHR)-derived, Regional databases, etc.) and cohort-derived (predominately within Alzheimer’s disease) data sources who have consented to provide such information for the purposes of bona fide researchers wanting to explore potential data partners for studies. As of June 2018, 18 population-based and 55 cohort-based data partners are contained within the Catalogue, from across 14 countries collaborating within EMIF. There are currently over 800 unique users and the Catalogue is home to 8 different communities so far (eg. EPAD, MOCHA, ADVANCE, …). The latter clearly indicates that there is a tremendous need for the EMIF Catalogue.
The Catalogue initially offered only high-level meta data information on the data source, but additional tools have been developed and installed to allow data source suitability evaluation and to initiate new research studies with the data sources in a secure environment.
We would welcome enquiries related to the Catalogue, and indeed any feedback from users following access approval (questions or feedback can be via this site, or from within the Catalogue).
Access to the Catalogue is via the following steps:
- Please access the Catalogue here.
- When accessing the Catalogue log-in front-end page, please click “Create Account” and follow instructions provided, then Sign In.
- Following Sign In, a user will be able to access the EHR-derived and/or cohort-derived communities pending approval by the Community Manager.
- User support is via the left-hand navigation panel, inclusive of a help function.
On behalf of EMIF we hope that the EMIF Catalogue will be a significant asset to the EU research community, and we look forward to its continued development and use, eventually within a broader research platform and communities.
For more information, please visit: http://www.emif.eu/emif-catalogue/
EMIF Platform EHR Video
This animation provides an overview of a service approach from the IMI project with EHR-derived, population data
EMIF Platform Cohort Data Video
This video provides an overview of a service approach from the IMI project with cohort-derived data
The EMIF platform is listed in Neuronet’s Asset Map, which provides a comprehensive view of the different assets resulting from the Innovative Medicines Initatives neurodegeneration research projects, including but not limited to genetic datasets, clinical cohorts and data platforms.
Explore it now: https://kb.imi-neuronet.org/admin/asset_map