Task Forces are small cross-project teams that were be created based on the recommendations of the Scientific Coordination Board or a specific Working Group for the purpose of advancing specific synergies to obtain concrete results in a limited time frame. Progress in Task Forces was be evaluated according to pre-defined milestones acting as kill-points. Results of a Task Forces were reported back to the Scientific Coordination Board.
The NEURO Cohort
The first Task Force that Neuronet launched is the NEURO Cohort. It intended to build a European parent cohort that continuously follows up patients across Europe, to serve as basis to facilitate specific research projects and studies.
Beginning as a grassroots initiative, NEURO Cohort was based on mutual trust and collaboration across a network of research and clinical sites according to jointly agreed, minimal protocols and policies that were designed to enhance visibility and participation of sites in the research landscape, and to improve initiation of further studies in the neurodegeneration field.
The NEURO Cohort represents a coalition of circa 40 active sites from 13 countries in Europe. In totality, these sites work across approximately 50 research protocols which include at least 25,000 European participants. At present, the effort is progressing through its initial objectives. Specifically, with the assistance of the Medical Informatics Platform within the eBrains infrastructure, it has established the technical framework to complete a proof-of-concept pilot across seven sites. Furthermore, the team is engaged in ongoing conversations with potential funders who are interested in supporting the NEURO Cohort initiative through studies that could be run in collaboration with its sites. NEURO Cohort has the potential to become a unique asset, in Europe and worldwide, that unites research and clinical sites in an attempt to overcome research fragmentation, helping accelerate innovative research in an unprecedented way. Efforts are being concerted to continue the NEURO Cohort beyond Neuronet's funding period (March 2019 - August 2022).