The European Prevention of Alzheimer’s Dementia Consortium releases its first wave of data

The European Prevention of Alzheimer’s Dementia (EPAD), a major Europe-wide initiative aiming to improve the understanding of the early stages of Alzheimer’s disease, has announced the release of its first wave of data as part of its EPAD Longitudinal Cohort Study. The project is one of the world leading dementia prevention studies involving 39 organisations. It offers a unique platform for testing and developing preventative treatments for Alzheimer’s dementia.

EDINBURGH, UK - 20th May 2015: Delegates gather for the European Prevention of Alzhelmer's Dementia Consortium (EPAD) conference at the University of Edinburgh's Pollock Halls. (Photograph: MAVERICK PHOTO AGENCY)

“Great to see that with the release of the first EPAD data set another great resource has become available for the Alzheimer’s disease research community worldwide”, said Serge Van der Geyten, EPAD Coordinator.”

The members of the EPAD project today announced the availability of the baseline data from the first 500 research participants (V500.0). It represents the first formal public data release from the EPAD project for use by academic researchers and institutions worldwide. In the chosen nomenclature (V500.0): V=version, “500” is the number of sequentially recruited research participants in each dataset and ‘.0’ refers to the study visit the dataset includes up (visit 0 refers to the baseline data). Each data set will have a DOI to reference the source of the data in subsequent publication (V500.0: doi:10.34688/epadlcs_v500.0_19.05.10).

Data collected in the EPAD Longitudinal Cohort Study are provided via secure online tools in order to facilitate collaboration between people and teams with similar research aims. Academic researchers and institutions from all over the world are invited to access the EPAD Research Access Process and begin the application process.  To access the data, you will need to make an online request by following the link at www.ep-ad.org/erap where you will find a variety of resources to support your research. If you experience any technical issues or if you want more information please submit your query to epadraadmin@ed.ac.uk.

EPAD is also pleased to announce the release of a new publication entitled “The European Prevention of Alzheimer’s Dementia (EPAD) Longitudinal Cohort Study: Baseline Data Release V500.0” in the Journal of Prevention of Alzheimer’s disease. This paper describes the baseline data from the first 500 research participants (V500.0) to assist current and future researchers with their analysis. V500.0 has been collected, quality checked, released and is now available via secure online tools.  The open access article is available here: https://doi.org/10.14283/jpad.2019.46

This article has been provided by EPAD: http://ep-ad.org/2019/11/18/the-european-prevention-of-alzheimers-dementia-epad-releases-its-first-wave-of-data/