2021: Virtual event

In 2019, the Neuronet Sessions introduced the projects of the Innovative Medicines Initative's (IMI) neurodegeneration portfolio to a broad audience composed of patients, caregivers, patient associations, researchers and clinicians. This was followed by the 2020 event where we expanded the focus, entitling it "Working together to address common challenges for European neurodegeneration research". Over the course of four parallel sessions, we showcased the work of IMI neurodegeneration projects with a focus on data sharing, ethics and regulatory/HTA interactions. In addition, we held a roundtable discussion, during which project leaders discussed the challenges experienced by public-private partnerships during the COVID-19 pandemic, and how research will evolve in the critical post-COVID period.

This year, we organise a concluding event, titled "Programme impact analysis - where we are and where we need to go".  Over the course of four parallel sessions, we showcase public and patient involvement, common challenges & lessons learned, how preclinical research can have a potential impact on people's lives and have a look into the future as well as the portfolio's impact.

 

Session 1

Elevating the patient voice: public involvement in Innovative Medicines Initiative neurodegeneration projects

 

Chairperson: Dianne Gove, Alzheimer Europe

  • Ana Diaz (Alzheimer Europe) – Alzheimer Europe’s work to promote Public Involvement in dementia research
  • Stina Saunders & a member of the participant panel (The University of Edinburgh) – The European Prevention of Alzheimer’s Dementia Research Participant Panel
  • Johanna Graeber (University Medical Center Schleswig-Holstein) – Patient Involvement and Engagement in IDEA-FAST
  • Alison Keogh (University College Dublin) – A roadmap of activity to develop patient and public involvement and engagement structures in Mobilise-D

Presenters

 

Nigel Hughes (EMIF & EHDEN)

Janssen Research & Development

 

Rodrigo Barnes (EPAD)

Aridhia

Colin Veal (EPAD)

University of Leicester

Manuela Rinaldi (Neuronet)

MODIS Life Sciences

 

Session 2

Collaboration and best practice: common challenges & lessons learned from the Innovative Medicines Initiative neurodegeneration portfolio

 

Chairperson: Carlos Diaz, SYNAPSE

  • Carlos Diaz (SYNAPSE) – The Neuronet approach: supporting collaboration and showcasing achievements
  • Lennert Steukers (Janssen) – Data sharing & Re-use
  • Dalia Dawoud (NICE) – Health Technology Assessment/Regulatory
  • Angela Bradshaw (Alzheimer Europe) – Ethics & Patient Privacy
  • Lewis Killin (SYNAPSE) – Sustainability

Each speaker will present 2-3 slides, followed by general discussion between panel members.

Presenters

 

Nathan Lea (EMIF)

University College London

Pilar Cañabaté (MOPEAD)

Fundació ACE

 

Sebastien Libert (RADAR-AD)

University College London

Angela Bradshaw (Neuronet)

Alzheimer Europe

 

 

Session 3

From bench to bedside: preclinical research in Innovative Medicines Initiative neurodegeneration projects

 

Chairperson: Craig Ritchie, The University of Edinburgh

  • Shruti Desai (RadboudUMC) – PD-MitoQUANT: Quantification of mitochondrial morphofunction in neuronal cells
  • Tania Fowke (MIMETAS BV) – Modeling ischemic stroke in a triculture neurovascular unit on-a-chip
  • Yang Shi (MRC Laboratory of Molecular Biology) - Structure-based classification of tauopathies and identification of PET ligand binding sites
  • Jannis Wißfeld (University Hospital Bonn) – Alzheimer’s Disease-protective Variant of CD33 Increases Microglial Activation

Presenters

 

Diana O’Rourke (Neuronet)

The National Institute for

Health and Care Excellence

 

Jacoline Bouvy (ROADMAP)

dr_0007_Dr Jacoline Bouvy (Senior Scientific Adviser, National Institute for Health and Care Excellence)

The National Institute for

Health and Care Excellence

 

Gill Farrar (AMYPAD)

GE Healthcare

Marco Viceconti (MOBILISE-D)

Alma Mater Studiorum

Università di Bologna

 

Session 4

Looking to the future: Impact of the Innovative Medicines Initiative’s neurodegeneration portfolio

 

Moderator: Lennert Steukers, Janssen

This session will start with two presentations, followed by a roundtable discussion involving all participants.

  • Fatima Salih (NICE) – Outcomes from the consultation on the IMI neurodegenerative disease research agenda
  • Carlos Diaz (SYNAPSE) – Neuronet’s NEURO Cohort, Knowledge Base & Asset Map

Participants:

Fatima Salih (NICE), Carlos Diaz (SYNAPSE), Laurent Pradier (SANOFI), Angela Bradshaw (Alzheimer Europe) & Martin Hofmann-Apitius (Fraunhofer SCAI)

Presenters

 

Andrew Owens King's College

King's College London

 

Martin Hofmann-Apitius Fraunhofer

Martin Hofmann-Apitius

Fraunhofer Institute for Algorithms
and Scientific Computing

Walter Maetzler University Hospital

University Hospital Tuebingen

 

Jochen Prehn Royal College of Surgeons

Jochen Prehn, PD-MitoQUANT Project Coordinator

Royal College of Surgeons in Ireland

Lynn Rochester Newcastle University

Newcastle University

Pieter Jelle Visser Maastricht University

VISSER Pieter Jelle Maastricht University, Amsterdam UMC, Netherlands

Maastricht University,
Amsterdam UMC

Early-Career Researcher presentations

Neuronet invited Early Career Researchers (defined as graduate students or researchers within 10 years of completing their graduate studies) working on the IMI neurodegeneration portfolio to submit abstracts in order to showcase the breadth and depth of IMI-funded neurodegeneration research as well as the diversity of project collaborators involved.

Natassia Brenman (EPAD)

Natassia-Brenman

 

 

 

 

University of Cambridge

 

Filipa Landeiro (ROADMAP)

Filipa Landeiro

 

 

 

 

University of Oxford

Marthe Smedinga (AMYPAD)

Marthe Smedinga

 

 

 

 

Radboud UMC

Marijn Muurling (RADAR-AD)

Marijn Muurling

 

 

 

 

Amsterdam UMC