In 2019, the Neuronet Sessions introduced the projects of the IMI neurodegeneration portfolio to a broad audience composed of patients, caregivers, patient associations, researchers and clinicians.
This year, we expanded the focus of the event, titled "Working together to address common challenges for European neurodegeneration research". Over the course of four parallel sessions, we showcased the work of IMI neurodegeneration projects on data sharing, ethics and regulatory/HTA interactions, and hosted presentations from early-career investigators working on these projects. In addition we held a roundtable discussion, during which project leaders discussed the challenges experienced by public-private partnerships during the COVID-19 pandemic, and how research will evolve in the critical post-COVID period.
We are pleased to provide you here with the 2020 Neuronet Sessions, which were held as part of the 30th Alzheimer Europe Virtual Annual Conference between 20-22 October, under the banner “Dementia in a Changing World”.
For further details, please check out the Neuronet Sessions brochure; if you have additional questions, please contact us via email@example.com.
Efficient data sharing: a must for science to respond to societal need
The first session, chaired by Neuronet’s Coordinator Carlos Díaz, was entitled “Efficient data sharing: a must for science to respond to societal needs”. During this session, Nigel Hughes, Rodrigo Barnes and Colin Veal from the EHDEN and EPAD IMI projects discussed technical solutions that are being developed by IMI projects to overcome key obstacles to effective sharing of health data, including data harmonisation, federated networks, digital data discovery tools and research environments.
Ensuring ethics and patient privacy whilst boosting research
The second Neuronet session, entitled “Ensuring ethics and patient privacy whilst boosting research”, was chaired by Jean Georges and included presentations from Nathan Lea, Pilar Cañabate and Sébastien Libert of the EMIF, MOPEAD and RADAR-AD projects, showcasing how they have addressed ethical and legal concerns around the use of remote monitoring technologies, autonomy and information governance for big data research.
Regulatory & HTA assessment: a critical step in delivering innovation for patient benefit
The next topic to be addressed was Regulatory & HTA assessment, in a session chaired by Diana O’Rourke of NICE. Presentations from Gill Farrar, Jacoline Bouvy and Marco Viceconti illustrated how the AMYPAD, ROADMAP and Mobilise-D IMI projects are actively engaging with European regulators, to identify pathways for approval of neuroimaging and digital biomarkers.
Public-Private Partnerships in the post-COVID era
Neuronet project leader Lennert Steukers closed off the 2020 Neuronet Sessions, moderating a discussion on how COVID-19 has affected large public-private partnership projects. In this roundtable session, IMI project leaders who are experts on mobility disorders, digital biomarkers, stratified medicine and dementia prevention discussed the research challenges caused by the ongoing pandemic, and how to ensure that neurodegenerative disease research remains a priority in the post-COVID period.
Andrew Owens King's College London
King's College London
The neurodegeneration portfolio of the Innovative Medicines Initiative – from project results to sustainable assets
Carlos Dìaz, CEO of Synapse Research Management Partners and Coordinator of the IMI NEURONET project, was the final speaker in plenary four. He discussed the neurodegeneration portfolio of the Innovative Medicines Initiative (IMI), and looked at ways to ensure project results are converted to sustainable assets.
Globally, society is facing several highly complex, urgent challenges, and to be able to respond, he said, scientific research may need a paradigm change in how it is organised. A systems leadership approach is being explored in the IMI neurodegeneration portfolio and it is hoped this will help to propel scientific efforts towards the much-needed actionable results.